Faith, Hope, Cure for NKH

Blog Post

July 1, 2019

We are very grateful for the opportunity to speak with Jack and Demarcus on Your Carolina to help spread awareness for Drake and our Saving Drake Campaign to fund the Gene Therapy Project for NKH.  Please check out the video for the full interview. 

July 1, 2019

Update July 1st, 2019

  Drake is finally starting to get back to his baseline for seizures, thank Jesus.  The last few weeks have been really hard.  We fear Drake is going back to the cycle of walking on egg shells every few days, due to the antibiotics not giving us go...

May 30, 2019

WE ARE SO CLOSE, WITH ANOTHER MATCH TODAY!!

May 29, 2019

We are SO CLOSE!!  Just $10 more dollars could help us get UNDER $10,000 of our $70,000 to start our Gene Therapy!  Please donate today! 

May 21, 2019

We are blown away and can't thank you enough for all the shares and the donations.  Please KEEP SHARING!  It is working!!

  WE HAVE TO MAKE IT TO $70,000 TO START THE GENE THERAPY PROJECT! 

May 2, 2019

Today is NKH Awareness Day.  It is a day that families affected by NKH across the world rally for awareness and funding to help bring change to this terrible disease.  If I am honest, we have been so busy with Drake, school finals, and trying to plan for this next phas...

December 7, 2018

   Drake is doing well.  We are still seeing good seizure control from the Amoxicillin (antibiotic) which is a complete God thing.  A few weeks back, Drake was hospitalized due to catching two respiratory viruses that made his breathing really strained.  He had to...

November 4, 2018

We have been home from our second hospital admission for about 6 days now.  Drake had to be admitted, twice in two weeks, due to complications from two pretty mean respiratory viruses, and him not being able to maintain his own oxygen.  Weeks prior to the viruses Drake...

October 30, 2018

Drake is doing well.  We brought him home on an antibiotic in a continued effort to starve off any bacteria that may, or may not, be brewing in his lungs.  He slept for eight hours straight when we got him home from the hospital yesterday.  We are able to continue food...

October 29, 2018

Drake had a good night.  He is very weak, but that is to be expected considering all he has been through.  The labs are all coming back in and all are showing pretty good.  We brought Drake into his PEDS doctor due to his fever getting back up on Saturday, and while th...

Please reload

Our Mission

The Drake Rayden Foundation, was founded by Eric and Tarah O'Sullivan, to bring hope through the gospel, raise awareness and funds for better treatment for NKH, and care for special needs families. 

  • YouTube
  • Twitter
  • Pinterest
  • LinkedIn
  • Instagram
  • Facebook
  • Amazon

Mailing Address:

2607 Woodruff Road,

Suite E, PMB 352

Simpsonville, South Carolina

United States, 29681

© 2020 by Drake Rayden Foundation.