Faith, Hope, Cure for NKH

Blog Post

October 28, 2018

We had to admit Drake to the hospital again last night due to his white count being very elevated on Saturday when we took him into the pediatrician.  Drake had been healing really well, and we were very excited to get to take him home last Wednesday.  The kids have be...

July 24, 2018

In the past ten days we have lost two children to NKH.  Two beautiful children ….gone…to a preventable death…… Two families have suffered the worst loss any parent, or child, could experience.  To an NKH community of less than 500 worldwide is so very tragic....

April 29, 2018

     We wanted to update on Drake’s progress and the foundation’s direction.  First, let me say… thank you…..thank you for all your prayers, your cards, photos of you wearing our t-shirts, setting up times for us to come share about NKH at your schools/offices, hosting...

February 3, 2018

   

  Drake started a new physical therapist (PT) last week.  Our old PT we loved and had been with us since he was about 3 months old, but due to some health issues, she had to stop practicing and focus on taking care of herself.  I was very nervous about starting...

December 2, 2017

     The last month and a half has been so busy.  We finished the run for the foundation, prepared for our trip to Florida for the week of two a day hyperbaric treatments, all while continuing neurofeedback training for Drake down in Charleston weekly sometimes biweekl...

October 15, 2017

  Drake turned one two days ago…. it really is hard to believe…. I normal do a huge first birthday for our children just because I love birthdays and the first one just seems super sweet….  Drake’s day was precious and although we didn’t do the traditional birthday “pa...

August 2, 2017

    When God chose us to be Drake’s parents 10 months ago, we had no way of knowing what lied ahead…..All we knew was what little the doctor’s knew, how fatal and severe this disease was, and our convictions that for as long as God kept Drake’s heart beating we would b...

July 18, 2017

  Drake’s appointment went really well. We got to meet with the new neurologist and it was so, so nice.  The story of how we got down here is pretty neat and I will have to save that for a later date, but our neurologist at home has trained under the new neurologist (e...

July 14, 2017

   We are going to visit a Pediatric Neurologist in Charleston today.  We had to postpone the last appointment because of our latest treatment “trial” and not wanting to add too many new things to Drake.  We are excited for a fresh direction or just the possibility of...

June 1, 2017

Five days….

   

    Five days is what we had this time….five days that we were able to enjoy the hope and the possibilities of a new treatment for Drake…an all natural treatment that would finally allow his body to heal…..five days before we were scrambling again tr...

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Our Mission

The Drake Rayden Foundation, was founded by Eric and Tarah O'Sullivan, to bring hope through the gospel, raise awareness and funds for better treatment for NKH, and care for special needs families. 

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Mailing Address:

2607 Woodruff Road,

Suite E, PMB 352

Simpsonville, South Carolina

United States, 29681

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