Faith, Hope, Cure for NKH

Blog Post

December 2, 2017

     The last month and a half has been so busy.  We finished the run for the foundation, prepared for our trip to Florida for the week of two a day hyperbaric treatments, all while continuing neurofeedback training for Drake down in Charleston weekly sometimes biweekl...

August 2, 2017

    When God chose us to be Drake’s parents 10 months ago, we had no way of knowing what lied ahead…..All we knew was what little the doctor’s knew, how fatal and severe this disease was, and our convictions that for as long as God kept Drake’s heart beating we would b...

July 18, 2017

  Drake’s appointment went really well. We got to meet with the new neurologist and it was so, so nice.  The story of how we got down here is pretty neat and I will have to save that for a later date, but our neurologist at home has trained under the new neurologist (e...

July 14, 2017

   We are going to visit a Pediatric Neurologist in Charleston today.  We had to postpone the last appointment because of our latest treatment “trial” and not wanting to add too many new things to Drake.  We are excited for a fresh direction or just the possibility of...

June 1, 2017

Five days….

   

    Five days is what we had this time….five days that we were able to enjoy the hope and the possibilities of a new treatment for Drake…an all natural treatment that would finally allow his body to heal…..five days before we were scrambling again tr...

May 13, 2017

   Drake is doing well these past few weeks.  We are seeing some strong seizures right now that we are trying to understand.  We did lower his Keppra about two weeks ago and he has done fine, but the past 4-5 days the seizures have really kicked up and they frustrate h...

April 7, 2017

   Drake’s seizures have hit an all time high…. He started Sunday seizing every 10 minutes or so and this continued until 10 pm Sunday evening when we had to give him a rescue med to ease them so he would sleep.  Monday morning he started very similar and ended the sam...

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Our Mission

The Drake Rayden Foundation, was founded by Eric and Tarah O'Sullivan, to bring hope through the gospel, raise awareness and funds for better treatment for NKH, and care for special needs families. 

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Mailing Address:

2607 Woodruff Road,

Suite E, PMB 352

Simpsonville, South Carolina

United States, 29681

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