Faith, Hope, Cure for NKH

Blog Post

December 2, 2017

     The last month and a half has been so busy.  We finished the run for the foundation, prepared for our trip to Florida for the week of two a day hyperbaric treatments, all while continuing neurofeedback training for Drake down in Charleston weekly sometimes biweekl...

October 15, 2017

  Drake turned one two days ago…. it really is hard to believe…. I normal do a huge first birthday for our children just because I love birthdays and the first one just seems super sweet….  Drake’s day was precious and although we didn’t do the traditional birthday “pa...

September 19, 2017

  

   We are on our way to Duke to meet yet another neurologist. We left this morning around 5:30 am and hope to be home later this afternoon.  We scheduled this appointment 6 months ago and are finally getting to go to see yet another specialist at a very esteemed...

July 18, 2017

  Drake’s appointment went really well. We got to meet with the new neurologist and it was so, so nice.  The story of how we got down here is pretty neat and I will have to save that for a later date, but our neurologist at home has trained under the new neurologist (e...

April 3, 2017

    Drake started seizing yesterday (Sunday) around 1 pm….. we have seen more seizure activity since we have been here but due to all the changes, this is to be expected.  Drake’s system is so sensitive that when he has the slightest change (constipation, sleep schedul...

February 18, 2017

       Thank you all so much for your prayers for Drake and our family.  We think we are out of the valley and Drake’s seizures are starting to calm.  He only had 10 all day yesterday and his awake times were so good.  He is eating like a little champ right now and we...

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Our Mission

The Drake Rayden Foundation, was founded by Eric and Tarah O'Sullivan, to bring hope through the gospel, raise awareness and funds for better treatment for NKH, and care for special needs families. 

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Mailing Address:

2607 Woodruff Road,

Suite E, PMB 352

Simpsonville, South Carolina

United States, 29681

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