Without Funding there will be no research....without research....
there is no treatment for our children.
My biggest fear is NOT that we won't find a cure for Drake... my biggest fear is
that the cure will be right in front of us.... and we won't have the funds to make it happen...that is why we keep pushing...that is why we fundraise...
that is why we need your help.
- Tarah O'Sullivan, Drake's mother
Your financial support enables us to fund vital research, and push for better treatment. NKH is an extremely rare disease, and government funding is very limited. Majority of funding, in the USA, comes directly from families of children affected. NKH is normally classified as an "orphan" disease.... Drake is not an orphan ... Drake is our son. These children affected have families that carry this burden with them every single day. Turning our homes into mini hospitals, and caring for extremely medically fragile children 24 hours a day. We hold on to the hope that the cure will come soon, and it will come in time for our children. Please help us help Drake, and many other children across
the world fighting to live with this fatal disease.