NKH Research

Cutting Edge
We are excited to announce, that because of your faithful support, and donations the Drake Rayden Foundation was able to send the
University of Notre Dame, Boler-Parseghian Center for Rare and Neglected Diseases a check for $67,000 in 2018!  
We are very humbled and thankful to be able to fund NKH research for our son, and other children, fighting this terrible disease.  Thank you to all our supporters, monthly donors, and corporate partners for making this possible.  We hope to have many more updates like this continue in the months ahead.  To God be the Glory. 

Currently there are only three major NKH researchers in the world.  The Drake Rayden Foundation had the opportunity to have individual meetings with all three in March/April 2018.  We all discussed research, their direction, and funding needed to obtain this vision.  The knowledge we obtained gave our board great insight on our direction for the foundation's future.  We are excited about the research to come for NKH, and will be updating this page very soon with specific institutes we have partnered with.  

These partnerships would not exist without your continued financial support.  Together we are making a difference.

We also are very excited about the work the Drake Rayden Foundation has been apart of to bring in a fourth research facility for the betterment of NKH research.  We believe this partnership is going to prove invaluable for treatment possibilities for NKH children in the future.

Kasturi Haldar, Ph.D
Rev. Julius A. Nieuwland, 
C.S.C. Professor;
Parsons-Quinn Director, CRND
Pathogenesis and Treatment of Rare and Neglected Diseases
Primary Research Areas:
Anatomy & Physiology
Cellular & Molecular Biology
Infectious & Vector-Borne Diseases
Microbiology & Immunology
Neuroscience & Behavior
Dr. Johan Van Hove, MD, PhD
Professor of Pediatrics
Clinical Genetics, Biochemical Genetics
Children's Hospital Colorado
Nicholas Greene, PhD
Professor of Developmental Neurobiology
ICH Developmental Biology & Cancer Programme
UCL GOS Insitute of Child Health
Research Expertise
Development of Neural Tube Defects
Folate One-Carbon Metabolism
Genetics of early CNS malformations
Kalipada Pahan, PhD
The Floyd A. Davis, MD, Professor of Neurology
Professor, Department of Neurological Sciences
Research Areas
Glial and neuronal cell signaling and neural stem cells differentiation with an emphasis to discover therapeutic strategies and drugs agains neuroinflammatory and neurodegenerative disorders, such as multiple sclerosis, Alzheimer's disease, Parkinson's disease, Batton Disease and HIV-associated neurocognitive disorders.

Our Mission

The Drake Rayden Foundation, was founded by Eric and Tarah O'Sullivan, to bring hope through the gospel, raise awareness and funds for better treatment for NKH, and care for special needs families. 

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Mailing Address:

2607 Woodruff Road,

Suite E, PMB 352

Simpsonville, South Carolina

United States, 29681

© 2020 by Drake Rayden Foundation.