Drake OSullivan | DRF Website

Faith, Hope, Cure for NKH

Blog Post

Round Two - Second Hospitalization in a Week

We had to admit Drake to the hospital again last night due to his white count being very elevated on Saturday when we took him into the p...

Faith, Hope, Cure for NKH

In the past ten days we have lost two children to NKH. Two beautiful children ….gone…to a preventable death…… Two families have suffered...

Future Plans

We wanted to update on Drake’s progress and the foundation’s direction. First, let me say… thank you…..thank you for all your prayers, y...

Fresh Eyes

Drake started a new physical therapist (PT) last week. Our old PT we loved and had been with us since he was about 3 months old, but due...

Birthdays

The last month and a half has been so busy. We finished the run for the foundation, prepared for our trip to Florida for the week of two...

First Birthday and Hour Glasses

Drake turned one two days ago…. it really is hard to believe…. I normal do a huge first birthday for our children just because I love bir...

Getting Started

When God chose us to be Drake’s parents 10 months ago, we had no way of knowing what lied ahead…..All we knew was what little the doctor’...

Update From Charleston

Drake’s appointment went really well. We got to meet with the new neurologist and it was so, so nice. The story of how we got down here ...

Charleston Bound

We are going to visit a Pediatric Neurologist in Charleston today. We had to postpone the last appointment because of our latest treatme...

Five Days

Five days…. Five days is what we had this time….five days that we were able to enjoy the hope and the possibilities of a new treatment fo...

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