Drake Rayden | DRF Website

Faith, Hope, Cure for NKH

Blog Post

20% in the FIRST 24 HOURS!!!

We are blown away and can't thank you enough for all the shares and the donations. Please KEEP SHARING! It is working!! WE HAVE TO MAKE...

Buried Alive

As I sit in my bathroom floor and type… if I am being honest… so many thoughts, and emotions are running through my head. The last few w...

Talks of Coming Home

Drake had a good night. He is very weak, but that is to be expected considering all he has been through. The labs are all coming back i...

The Unknown

Drake is fighting a virus right now. He started Wednesday with a slight fever, yet his seizures have been very calm. Sadly over all, he...

Faith, Hope, Cure for NKH

In the past ten days we have lost two children to NKH. Two beautiful children ….gone…to a preventable death…… Two families have suffered...

The Sandbar..Update

Drake is on day two of still seizing. He did have a few times last night that he was able to sleep. He only had about 5-7 seizures thro...

Another Step of Faith

Everyone is doing well. Drake has had some highs and lows these past few weeks. The lows are hard, as they remind us just how fragile h...

Lemonade Stands

Our kids, and their friends in the neighborhood, have wanted to do something to have their own "fundraiser" for Drake... I came home from...

I saw God Today...

Drake is struggling a little right now… we made an adjustment to his meds where we dropped a WHOLE dose of sodium benzoate (artificial pr...

Fresh Eyes

Drake started a new physical therapist (PT) last week. Our old PT we loved and had been with us since he was about 3 months old, but due...

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