May 5, 2023
Join us for the Fourth Annual DRF Open,
a Charity Golf Tournament,
on May 5th, 2023.
Eric and Tarah O'Sullivan formed the Drake Rayden Foundation
after their youngest son, Drake Rayden, and their youngest daughter,
Vivian Faye, were both diagnosed with an extremely rare, terminal
metabolic disease called
NonKetotic Hyperglycinemia, or NKH.
Drake Rayden and Vivian Faye O'Sullivan
Since NKH is such a rare genetic disease with only around 500 cases, government funding is very limited. This means the burden of raising funds for research falls to the families of these medically fragile children.
The Drake Rayden Foundation raises awareness for NKH, fights for better treatment, and supports desperately needed research to change the lives of children around the world living with NKH.