Drakerayden | South Carolina | Drake Rayden Foundation

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Eric and Tarah O'Sullivan formed

the Drake Rayden Foundation

after their youngest son, Drake Rayden, and subsequently their youngest daughter, Vivian Faye, were both diagnosed with an extremely rare, terminal metabolic disease called

NonKetotic Hyperglycinemia, or NKH.

Learn More About Our Founders

Vivian Faye O'Sullivan

Drake Rayden O'Sullivan

DRF Open Charity Tournament

Register HERE to play in the

Inaugural DRF Open Tournament

happening on

August 28th, 2020

- Legacy Pines Golf Course -

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Treatment Saves Children's Lives

The Drake Rayden Foundation focuses our NKH Research Philanthropic Funding on a methodology we call Treatment Centered Research. Too often research focuses on publishing papers, studying disease pathology, and filling books. Books sitting on shelves do not save children’s lives... treatments do. Treatment Centered Research (TCR) is our number one focus, and the only way to bring change to a disease that has not seen treatment advances in the past 30 years.

The Drake Rayden Foundation has funded $158,978 to treatment driven Research for NonKetotic Hyperglycinemia, (NKH) since establishment in August 2017.

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OUR FOCUS

Non Ketotic Hyperglycinemia is a cruel, terminal pediatric disease that steals the life from the very children it in dwells.

Treatment is slowed by governmental funding being very limited. This means the burden of raising funds for research falls to the families of these medically fragile children.

The Drake Rayden Foundation fights to ease this burden and give these families hope.

One Foundation

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Six Research Facilities

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One Mission

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Finding A Cure

Being involved in the research is simply not enough, we aim to direct it.

By supporting our efforts you give us the tools to fund and be immersed in the most advancing sciences.

Drake Rayden Foundation

fiercely pursues the most advanced, progressive treatment in the

research field for

children suffering with

Non Ketotic Hyperglycinemia (NKH).

Stay Connected

Never miss an update. Follow and Like our

social media sites and

track our journey.

Get Event Updates,

Research Progress, and

Follow Drake and Vivian's Progress.

Subscribe to our YouTube Channel 'Saving Drake'

and get special video

updates and behind the

scenes footage.

Like to stay up to date with our blog posts? Read about our journey here and

make sure you sign up to receive updates straight to your email .

Our goals are big.....and our God is enough.