Eric and Tarah O'Sullivan formed

the Drake Rayden Foundation

after their youngest son, Drake Rayden, and subsequently their youngest daughter, Vivian Faye, were both diagnosed with an extremely rare, terminal metabolic disease called

NonKetotic Hyperglycinemia, or NKH.

Vivian Faye O'Sullivan

Drake Rayden O'Sullivan

DRF Open Charity Tournament

Register HERE to play in the

 Inaugural DRF Open Tournament

happening on 

August 28th, 2020

 - Legacy Pines Golf Course -

IVs in children.jpg
Treatment Saves Children's Lives
The Drake Rayden Foundation focuses our NKH Research Philanthropic Funding on a methodology we call Treatment Centered Research.  Too often research focuses on publishing papers, studying disease pathology, and filling books.  Books sitting on shelves do not save children’s lives... treatments do.  Treatment Centered Research (TCR) is our number one focus, and the only way to bring change to a disease that has not seen treatment advances in the past 30 years. 

The Drake Rayden Foundation has funded $158,978 to treatment driven Research for NonKetotic Hyperglycinemia, (NKH) since establishment in August 2017.  

DRF-Social Media.png
DRF-Event image.png
DRF-Lifeline Partner Image front.png


Non Ketotic Hyperglycinemia is a cruel, terminal pediatric disease that steals the life from the very children it in dwells.  

Treatment is slowed by governmental funding being very limited.  This means the burden of raising funds for research falls to the families of these medically fragile children. 

The Drake Rayden Foundation fights to ease this burden and give these families hope. 



One Foundation

- -

Six Research Facilities

- - -

One Mission

- -

Finding A Cure

Being involved in the research is simply not enough, we aim to direct it.


By supporting our efforts you give us the tools to fund and be immersed in the most advancing sciences.

Drake Rayden Foundation 

fiercely pursues the most advanced, progressive treatment in the

research field for

children suffering with


Non Ketotic Hyperglycinemia (NKH).  


Stay Connected

Never miss an update.  Follow and Like our 

social media sites and

track our journey.  

Get Event Updates,

Research Progress, and 

Follow Drake and Vivian's Progress. 


Subscribe to our YouTube Channel  'Saving Drake'

and get special video

updates and behind the 

scenes footage. 

  • YouTube
  • LinkedIn
  • Facebook
  • Instagram
  • Amazon Smile

Like to stay up to date with our blog posts?  Read about our journey here and 

make sure you sign up to receive updates straight to your email .

Our goals are big.....and our God is enough.

Our Mission

The Drake Rayden Foundation, was founded by Eric and Tarah O'Sullivan, to bring hope through the gospel, raise awareness and funds for better treatment for NKH, and care for special needs families. 

  • YouTube
  • Twitter
  • Pinterest
  • LinkedIn
  • Instagram
  • Facebook
  • Amazon

Mailing Address:

2607 Woodruff Road,

Suite E, PMB 352

Simpsonville, South Carolina

United States, 29681

© 2020 by Drake Rayden Foundation.