Eric and Tarah O'Sullivan formed

the Drake Rayden Foundation

after their youngest son, Drake Rayden, and subsequently their youngest daughter, Vivian Faye, were both diagnosed with an extremely rare, terminal metabolic disease called

NonKetotic Hyperglycinemia, or NKH.

Vivian Faye O'Sullivan

Drake Rayden O'Sullivan

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OUR FOCUS

Non Ketotic Hyperglycinemia is a cruel, terminal pediatric disease that steals the life from the very children it in dwells.  

Treatment is slowed by governmental funding being very limited.  This means the burden of raising funds for research falls to the families of these medically fragile children. 

The Drake Rayden Foundation fights to ease this burden and give these families hope. 

 

 

One Foundation

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Six Research Facilities

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One Mission

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Finding A Cure

Being involved in the research is simply not enough, we aim to direct it.

 

By supporting our efforts you give us the tools to fund and be immersed in the most advancing sciences.

Drake Rayden Foundation 

fiercely pursues the most advanced, progressive treatment in the

research field for

children suffering with

 

Non Ketotic Hyperglycinemia (NKH).  

 

Stay Connected

Never miss an update.  Follow and Like our 

social media sites and

track our journey.  

Get Event Updates,

Research Progress, and 

Follow Drake and Vivian's Progress. 

 

Subscribe to our YouTube Channel  'Saving Drake'

and get special video

updates and behind the 

scenes footage. 

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Like to stay up to date with our blog posts?  Read about our journey here and 

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Our goals are big.....and our God is enough.

Our Mission

The Drake Rayden Foundation, was founded by Eric and Tarah O'Sullivan, to bring hope through the gospel, raise awareness and funds for better treatment for NKH, and care for special needs families. 

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Mailing Address:

2607 Woodruff Road,

Suite E, PMB 352

Simpsonville, South Carolina

United States, 29681

© 2020 by Drake Rayden Foundation.