Eric and Tarah O'Sullivan formed
the Drake Rayden Foundation
after their youngest son, Drake Rayden, and subsequently their youngest daughter, Vivian Faye, were both diagnosed with an extremely rare, terminal metabolic disease called
NonKetotic Hyperglycinemia, or NKH.
Vivian Faye O'Sullivan
Drake Rayden O'Sullivan
The Drake Rayden Foundation has funded $158,978 to treatment driven Research for NonKetotic Hyperglycinemia, (NKH) since establishment in August 2017.
Non Ketotic Hyperglycinemia is a cruel, terminal pediatric disease that steals the life from the very children it in dwells.
Treatment is slowed by governmental funding being very limited. This means the burden of raising funds for research falls to the families of these medically fragile children.
The Drake Rayden Foundation fights to ease this burden and give these families hope.
Six Research Facilities
- - -
Finding A Cure
Being involved in the research is simply not enough, we aim to direct it.
By supporting our efforts you give us the tools to fund and be immersed in the most advancing sciences.
Drake Rayden Foundation
fiercely pursues the most advanced, progressive treatment in the
research field for
children suffering with
Non Ketotic Hyperglycinemia (NKH).
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