Eric and Tarah O'Sullivan formed
the Drake Rayden Foundation
after their youngest son, Drake Rayden, and subsequently their youngest daughter, Vivian Faye, were both diagnosed with an extremely rare, terminal metabolic disease called
NonKetotic Hyperglycinemia, or NKH.
OUR FOCUS
Non Ketotic Hyperglycinemia is a cruel, terminal pediatric disease that steals the life from the very children it in dwells.
Treatment is slowed by governmental funding being very limited. This means the burden of raising funds for research falls to the families of these medically fragile children.
The Drake Rayden Foundation fights to ease this burden and give these families hope.
One Foundation
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Six Research Facilities
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One Mission
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Finding A Cure
Being involved in the research is simply not enough, we aim to direct it.
By supporting our efforts you give us the tools to fund and be immersed in the most advancing sciences.
Drake Rayden Foundation
fiercely pursues the most advanced, progressive treatment in the
research field for
children suffering with
Non Ketotic Hyperglycinemia (NKH).
Stay Connected
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track our journey.
Get Event Updates,
Research Progress, and
Follow Drake and Vivian's Progress.
Subscribe to our YouTube Channel 'Saving Drake'
and get special video
updates and behind the
scenes footage.
