The O’Sullivan Family

Drake Rayden O'Sullivan

                 was born on October 13, 2016 a healthy, blue eyed boy, weighing 7 lbs 2 oz.  Drake was released from the hospital the very next day to go home to his anxiously awaiting three older siblings.  "He was perfect", soon become the household consensus.  Three days after birth, Drake became very lethargic and would not nurse well.  Eric and Tarah (Drake's parents) took him to be checked at SRHS, where within hours he was transferred by ambulance to Greeville Hospital, and admitted in the PICU ward.  Drake spent the next 28 days there, where his family learned the devastating news....    

Drake's body does not make the enzyme to break down glycine, a basic amino acid, which causes extremely unsafe levels to store in his blood and spinal fluid.  The excess glycine causes severe, uncontrollable seizures that result in brain injury and malformations.  Drake's mutations are of the most severe form, with a very short life expectancy.  There are currently only 500 children living in the world with this disease.  The Drake Rayden Foundation is formed to raise awareness and funds to obtain the research and treatments that are vital to saving Drake's life.  

     Drake's mother keeps a Blog, Your Will, Not Mine, of Drake's journey.

 She posts of Drake's current progress and set backs.  

    "We want Drake's journey, and struggles, to be a journey of HOPE...our hope in the Lord gives

our suffering, Drake's suffering, a purpose... - Tarah

IMG_2216
IMG_7049
FullSizeRender 19
IMG_2333
Drake-cross-hospital
IMG_0003
FullSizeRender 2
Untitled
IMG_4619
IMG_7133
IMG_2247
KCWH9860

Our Mission

The Drake Rayden Foundation, was founded by Eric and Tarah O'Sullivan, to bring hope through the gospel, raise awareness and funds for better treatment for NKH, and care for special needs families. 

  • YouTube
  • Twitter
  • Pinterest
  • LinkedIn
  • Instagram
  • Facebook
  • Amazon

Mailing Address:

2607 Woodruff Road,

Suite E, PMB 352

Simpsonville, South Carolina

United States, 29681

© 2020 by Drake Rayden Foundation.