Tarah OSullivan5 minCharleston BoundWe are going to visit a Pediatric Neurologist in Charleston today. We had to postpone the last appointment because of our latest...
Tarah OSullivan5 minBase LevelsRight now we are trying to get base labs for Drake so that we can hopefully start our trial…end of next week. Drake is doing well, he...
Tarah OSullivan3 minFive DaysFive days…. Five days is what we had this time….five days that we were able to enjoy the hope and the possibilities of a new treatment...
Tarah OSullivanApr 166 minLife With NKHJesus Moment in the ERShe looked at us and then with a exhale stated, “ I am just going to ask..." "Yes ma’am", we replied, not fully knowing what we were agreei
Tarah OSullivanApr 164 minLife With NKHVivian is home..All Vivian’s levels stayed in really nice places after her infusion of red blood cells last night. Her ECG came back normal, and other than