Tarah OSullivan4 minLife With NKHAnother ChildDrake is doing well. He has calmed down from the seizures we were seeing the week before. His weight has increased, so we are seeing...
Tarah OSullivan4 minLife With NKHI saw God Today...Drake is struggling a little right now… we made an adjustment to his meds where we dropped a WHOLE dose of sodium benzoate (artificial...
Tarah OSullivanApr 166 minLife With NKHJesus Moment in the ERShe looked at us and then with a exhale stated, “ I am just going to ask..." "Yes ma’am", we replied, not fully knowing what we were agreei
Tarah OSullivanApr 164 minLife With NKHVivian is home..All Vivian’s levels stayed in really nice places after her infusion of red blood cells last night. Her ECG came back normal, and other than