Blog-page-1 | South Carolina | Drake Rayden Foundation

Faith, Hope, Cure for NKH

Blog Post

TODAY IS THE DAY!

Please watch our video to see our exciting news about an amazing opportunity God has opened up for Drake, and other children suffering wi...

Buried Alive

As I sit in my bathroom floor and type… if I am being honest… so many thoughts, and emotions are running through my head. The last few w...

May 2nd - NKH Awareness Day

Today is NKH Awareness Day. It is a day that families affected by NKH across the world rally for awareness and funding to help bring cha...

New Treatments

Drake is doing well. We are still seeing good seizure control from the Amoxicillin (antibiotic) which is a complete God thing. A few we...

How Great Thou Art

We have been home from our second hospital admission for about 6 days now. Drake had to be admitted, twice in two weeks, due to complica...

Biochemistry

Drake is doing well. We brought him home on an antibiotic in a continued effort to starve off any bacteria that may, or may not, be brew...

Talks of Coming Home

Drake had a good night. He is very weak, but that is to be expected considering all he has been through. The labs are all coming back i...

Round Two - Second Hospitalization in a Week

We had to admit Drake to the hospital again last night due to his white count being very elevated on Saturday when we took him into the p...

First Day Home

Drake is struggling a bit. His seizures have been coming about every 10-15 minutes all day. I will take him to our pediatrician tomorrow,...

Coming HOME!!!

Look who is coming home today!!!! Praise the Lord!! We have all our equipment in tow and they are letting us care for him at home under d...

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